European Genetics Foundation
Encyclopedia
The European Genetics Foundation (EGF) is a non-profit organization, dedicated to the training of young geneticist
Geneticist
A geneticist is a biologist who studies genetics, the science of genes, heredity, and variation of organisms. A geneticist can be employed as a researcher or lecturer. Some geneticists perform experiments and analyze data to interpret the inheritance of skills. A geneticist is also a Consultant or...

s active in medicine, to continuing education in genetics/genomics and to the promotion of public understanding of genetics. Its main office is located in Bologna, Italy.

Background

In 1988 Prof. Giovanni Romeo, President of the European Genetics Foundation (EGF) and professor of Medical Genetics at the University of Bologna
University of Bologna
The Alma Mater Studiorum - University of Bologna is the oldest continually operating university in the world, the word 'universitas' being first used by this institution at its foundation. The true date of its founding is uncertain, but believed by most accounts to have been 1088...

 and Prof. Victor A. McKusick
Victor A. McKusick
Victor Almon McKusick , internist and medical geneticist, was University Professor of Medical Genetics and Professor of Medicine at the Johns Hopkins Hospital, Baltimore, MD, USA...

 founded together the European School of Genetic Medicine (ESGM).

Since that time ESGM has taught genetics to postgraduate students (young M.D.
Doctor of Medicine
Doctor of Medicine is a doctoral degree for physicians. The degree is granted by medical schools...

 and Ph.D.
Doctor of Philosophy
Doctor of Philosophy, abbreviated as Ph.D., PhD, D.Phil., or DPhil , in English-speaking countries, is a postgraduate academic degree awarded by universities...

) from some 70 different countries. Most of the courses are presented at ESGM's Main Training Center (MTC) in Bertinoro di Romagna (Italy), and are also available via webcast
Webcast
A webcast is a media presentation distributed over the Internet using streaming media technology to distribute a single content source to many simultaneous listeners/viewers. A webcast may either be distributed live or on demand...

 at authorized Remote Training Centers (RTC) in various countries in Europe and the Mediterranean area (Hybrid Courses). In the Netherlands
Netherlands
The Netherlands is a constituent country of the Kingdom of the Netherlands, located mainly in North-West Europe and with several islands in the Caribbean. Mainland Netherlands borders the North Sea to the north and west, Belgium to the south, and Germany to the east, and shares maritime borders...

 and Switzerland
Switzerland
Switzerland name of one of the Swiss cantons. ; ; ; or ), in its full name the Swiss Confederation , is a federal republic consisting of 26 cantons, with Bern as the seat of the federal authorities. The country is situated in Western Europe,Or Central Europe depending on the definition....

, medical geneticists must attend at least one ESGM course before admission to their Board examinations.

For these reasons, the School has been able to expand and to obtain funding from the European Commission
European Commission
The European Commission is the executive body of the European Union. The body is responsible for proposing legislation, implementing decisions, upholding the Union's treaties and the general day-to-day running of the Union....

 and from other international organizations.

Presentation of the Ronzano Project

The European School of Genetic Medicine was founded in 1988 and saw rapid success, which necessitated that an administrative body be formed. To this end the European Genetics Foundation was born in Genoa
Genoa
Genoa |Ligurian]] Zena ; Latin and, archaically, English Genua) is a city and an important seaport in northern Italy, the capital of the Province of Genoa and of the region of Liguria....

 on 20 November 1995, with the following aims:
  • to run the ESGM, promoting the advanced scientific and professional training of young European Geneticists, with particular attention to the applications in the field of preventive medicine;
  • to promote public education about genetics discoveries;
  • to organize conferences, courses, international prizes and initiatives aimed at bringing together the scientific and humanistic disciplines.


The ESGM began receiving funding from the European Union and from other international organizations including the European Society of Human Genetics, the Federation of European Biochemical Societies
Federation of European Biochemical Societies
The Federation of the European Biochemical Societies, frequently abbreviated FEBS is an international scientific society promoting activities in biochemistry, molecular biology and molecular biophysics in Europe...

, the March of Dimes
March of Dimes
The March of Dimes Foundation is a United States nonprofit organization that works to improve the health of mothers and babies.-Organization:...

 and UNESCO
UNESCO
The United Nations Educational, Scientific and Cultural Organization is a specialized agency of the United Nations...

. Since its founding, the ESGM has become a model for other European institutions responsible for advanced training in genetics.

In order to fully realize all of the European Genetics Foundation’s aims, the Foundation has identified a permanent site for the ESGM at the Hermitage
Hermitage (religious retreat)
Although today's meaning is usually a place where a hermit lives in seclusion from the world, hermitage was more commonly used to mean a settlement where a person or a group of people lived religiously, in seclusion.-Western Christian Tradition:...

 of Ronzano
Ronzano
Ronzano is a suburban district of Bologna, Italy on a hill westsouthwest of the city centre. It is notable for its hermitage.In 1848 G. Dozza discovered Etruscan artefacts on the Ronzano hill...

, a monastery situated in the hills of Bologna, at 3.5 km from the city center and 7 km from the airport. The monastic order of the Servants of Maria, founded in Florence in 1233 and owner of the Hermitage, donated 16,000 m² for the purpose of constructing this center, which will be named the Giuseppe Levi and Victor A. Mckusick Euro-Mediterranean Center for Genetics and Medicine. Giuseppe Levi, a world-famous scientist, trained three Nobel Laureates (Salvador Luria, Renato Dulbecco
Renato Dulbecco
Renato Dulbecco is an Italian virologist who won a 1975 Nobel Prize in Physiology or Medicine for his work on reverse transcriptase. In 1973 he was awarded the Louisa Gross Horwitz Prize from Columbia University together with Theodore Puck and Harry Eagle. Dulbecco was the recipient of the Selman A...

 and Rita Levi-Montalcini
Rita Levi-Montalcini
Rita Levi-Montalcini , Knight Grand Cross is an Italian neurologist who, together with colleague Stanley Cohen, received the 1986 Nobel Prize in Physiology or Medicine for their discovery of nerve growth factor...

), and Victor A. McKusick is considered the father of medical genetics
Medical genetics
Medical genetics is the specialty of medicine that involves the diagnosis and management of hereditary disorders. Medical genetics differs from Human genetics in that human genetics is a field of scientific research that may or may not apply to medicine, but medical genetics refers to the...

throughout the world.

The European Genetics Foundation envisions the Ronzano Center as a venue for advanced training, and as a think tank where experts in genetics and related disciplines from all over the world can discuss issues of scientific, social, and political relevance, and to develop problem-solving strategies to address these issues.

The new center will host:
  • the European School of Genetic Medicine (ESGM)
  • a European observatory for the legislation regarding genetic testing and policy regarding genetics research
  • advanced scientific courses outside of the area of Genetics, geared toward scientist from developing countries
  • a residential center in which Professors and students can live during residential courses
  • the Federation of the Association for Rare Diseases of Emilia-Romagna. (GIG, Genetic Interest Groups)
  • various projects to diffuse information about genetics to the public.
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