North American Association of Central Cancer Registries

North American Association of Central Cancer Registries, Inc. (NAACCR)

Established in 1987, NAACCR, Inc. is a collaborative umbrella organization

Umbrella organization

An umbrella organization is an association of institutions, who work together formally to coordinate activities or pool resources. In business, political, or other environments, one group, the umbrella organization, provides resources and often an identity to the smaller organizations...

for cancer

Cancer

Cancer , known medically as a malignant neoplasm, is a large group of different diseases, all involving unregulated cell growth. In cancer, cells divide and grow uncontrollably, forming malignant tumors, and invade nearby parts of the body. The cancer may also spread to more distant parts of the...

registries, governmental agencies, professional associations, and private groups in North America interested in enhancing the quality and use of cancer registry

Cancer registry

A cancer registry is a systematic collection of data about cancer and tumor diseases. The data is collected by Cancer Registrars. Cancer Registrars capture a complete summary of patient history, diagnosis, treatment, and status for every cancer patient in the United States, and other countries as...

data. All central cancer registries in the United States and Canada are members.

Organizational Mission

The North American Association of Central Cancer Registries, Inc. (NAACCR) is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; certifies population-based registries; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and epidemiologic research, public health

Public health

Public health is "the science and art of preventing disease, prolonging life and promoting health through the organized efforts and informed choices of society, organizations, public and private, communities and individuals" . It is concerned with threats to health based on population health...

programs, and patient care to reduce the burden of cancer in North America.

Leadership and Committees

NAACCR is governed by an 11-member Board of Directors. Its members participate in 10 standing committees, three special committees, and temporary ad hoc committees. These include:

Standing Committees

Bylaws Committee

Communications Committee

Data Evaluation and Certification Committee

Data Use and Research Committee

Education Committee

Information and Technology Committee

Nominating Committee

Programs Committee

Registry Operations Committee

Uniform Data Standards Committee

Ad Hoc Committees

GIS

Geographic Information System

A geographic information system, geographical information science, or geospatial information studies is a system designed to capture, store, manipulate, analyze, manage, and present all types of geographically referenced data...

Committee

Interoperability

Interoperability

Interoperability is a property referring to the ability of diverse systems and organizations to work together . The term is often used in a technical systems engineering sense, or alternatively in a broad sense, taking into account social, political, and organizational factors that impact system to...

Committee

Other Special Committees

Cancer Registration Steering Committee

Institutional Review Board

Institutional review board

An institutional review board , also known as an independent ethics committee or ethical review board , is a committee that has been formally designated to approve, monitor, and review biomedical and behavioral research involving humans with the aim to protect the rights and welfare of the...

Scientific Editorial Board

Sponsoring Member Organizations

NAACCR is sponsored by ten member organizations, which participate in quarterly Sponsoring Member Organization meetings and provide input on NAACCR’s cancer surveillance activities:

American Cancer Society

American Cancer Society

The American Cancer Society is the "nationwide community-based voluntary health organization" dedicated, in their own words, "to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and...

American College of Surgeons

The American College of Surgeons is an educational association of surgeons created in 1913 to improve the quality of care for the surgical patient by setting high standards for surgical education and practice.-Membership:...

American Joint Committee on Cancer

The American Joint Committee on Cancer is an organization best known for defining and popularizing cancer staging standards, officially the AJCC staging system....

Canadian Partnership Against Cancer

The Canadian Partnership Against Cancer will be a not-for-profit corporation to implement the Canadian Strategy for Cancer Control. It was announced on 23 November 2006, and will be funded $260 million over five years...

Centers for Disease Control and Prevention

The Centers for Disease Control and Prevention are a United States federal agency under the Department of Health and Human Services headquartered in Druid Hills, unincorporated DeKalb County, Georgia, in Greater Atlanta...

College of American Pathologists

The College of American Pathologists , is a medical society serving more than 17,000 physician members and the laboratory community throughout the world....

National Cancer Institute

The National Cancer Institute is part of the National Institutes of Health , which is one of 11 agencies that are part of the U.S. Department of Health and Human Services. The NCI coordinates the U.S...

National Cancer Registrars Association

The National Cancer Registrars Association is a not-for-profit association representing cancer registry professionals and Certified Tumor Registrars . NCRA's primary focus is education and certification with the goal to ensure all cancer registry professionals have the required knowledge to be...

Public Health Agency of Canada

The Public Health Agency of Canada is an agency of the Government of Canada that is responsible for public health, emergency preparedness, and response and infectious and chronic disease control and prevention...

Cancer Data Standards

One of NAACCR’s first goals was to achieve consensus on cancer registration standards among the many standard-setting organizations in the United States and Canada, in order to facilitate compilation and comparison of information across different registries. Today, nearly all registries in North America have adopted the NAACCR consensus standards. NAACCR updates these standards annually to meet the changing needs of the registry community.

Cancer Research

Every year, NAACCR issues a call for data from its registry members. These data are evaluated for accuracy and compiled into analytic files to produce CINA, an annual statistical monograph of cancer incidence in the United States and Canada; CINA+ Online, an online query system of cancer incidence data for the previous five years from selected member registries; and CINA Deluxe, a data file for NAACCR researchers to conduct cancer surveillance systems. NAACCR also collaborates with other cancer organizations to produce the Annual Report to the Nation on the Status of Cancer.

Education and Training

In order to develop and maintain the skills and knowledge of cancer reporters in North America, NAACCR creates and releases training workshops, resource materials, and continuing education opportunities. These include online webinars, in-person workshops, scholarships and grants, and other resources. Since its inception, NAACCR has also hosted an annual meeting, focusing on a different theme each year.

External links

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