Polyposis registries
Encyclopedia
Polyposis registries exist for the purpose of understanding the genetic disease familial adenomatous polyposis
. The registries provide a service to doctors for identification, surveillance and management of families and individuals with high colorectal cancer
risk from Familial Adenomatous Polyposis (FAP) and Hereditary Non-Polyposis Colorectal Cancer (HNPCC). The Centers for Disease Control of the United States provides, royalty-free, Registry Plus software for collecting and processing cancer registry data compliant with national standards established by health professionals and regulators to understand and address the burden of cancer more effectively.
Polyposis registries have been used in numerous academic studies to assess morbidity and mortality of colorectal cancer related to FAP, and use of registry data has resulted in improved treatment and reduced mortality from polyposis-related colorectal cancer.
The University of Texas M. D. Anderson Cancer Center maintains an international list of registries related to hereditary colon cancer.
Some of the registries include:
The Johns Hopkins Hereditary Colorectal Cancer Registry (Johns Hopkins School of Medicine, Baltimore, MD, USA)
Polyposis Registry] (St Mark's Hospital Foundation, St Mark's Hospital, Middlesex, United Kingdom)
Familial adenomatous polyposis
Familial adenomatous polyposis is an inherited condition in which numerous polyps form mainly in the epithelium of the large intestine. While these polyps start out benign, malignant transformation into colon cancer occurs when not treated....
. The registries provide a service to doctors for identification, surveillance and management of families and individuals with high colorectal cancer
Colorectal cancer
Colorectal cancer, commonly known as bowel cancer, is a cancer caused by uncontrolled cell growth , in the colon, rectum, or vermiform appendix. Colorectal cancer is clinically distinct from anal cancer, which affects the anus....
risk from Familial Adenomatous Polyposis (FAP) and Hereditary Non-Polyposis Colorectal Cancer (HNPCC). The Centers for Disease Control of the United States provides, royalty-free, Registry Plus software for collecting and processing cancer registry data compliant with national standards established by health professionals and regulators to understand and address the burden of cancer more effectively.
Polyposis registries have been used in numerous academic studies to assess morbidity and mortality of colorectal cancer related to FAP, and use of registry data has resulted in improved treatment and reduced mortality from polyposis-related colorectal cancer.
The University of Texas M. D. Anderson Cancer Center maintains an international list of registries related to hereditary colon cancer.
Some of the registries include:
North America
Steve Atanas Stavro Familial Gastrointestinal Cancer Registry (Mount Sinai Hospital, Toronto, Ontario, Canada)The Johns Hopkins Hereditary Colorectal Cancer Registry (Johns Hopkins School of Medicine, Baltimore, MD, USA)
Europe
http://www.polyposisregistry.org.uk/stmarks/about.htmSt. Mark's HospitalSt. Mark's Hospital
St. Mark's Hospital is a hospital in the Harrow and Wembley border as well as the London Borough of Harrow and London Borough of Brent border in northwest London, UK. It is the only hospital in the world to specialise entirely in intestinal and colorectal medicine and is a national and...
Polyposis Registry] (St Mark's Hospital Foundation, St Mark's Hospital, Middlesex, United Kingdom)