Cystic Fibrosis Foundation
Encyclopedia
The Cystic Fibrosis Foundation (CFF) is a non-profit organization
in the United States
established to provide the means to cure and control cystic fibrosis
(CF). The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people with the disease. The Foundation also engages in legislative lobbying for cystic fibrosis.
. In addition to providing grants
for research into cystic fibrosis and supporting clinical trials, the foundation promotes and accredits 115 specialized centers for treatment of individuals with cystic fibrosis. The Foundation has over 80 chapters and offices across the US.
In 1989, scientists working for the Foundation discovered the gene that causes cystic fibrosis, considered the key to developing a cure for CF.
The Foundation has been a pioneer of CF treatment, having played a major role in the development and use of four FDA-approved therapies.
Non-profit organization
Nonprofit organization is neither a legal nor technical definition but generally refers to an organization that uses surplus revenues to achieve its goals, rather than distributing them as profit or dividends...
in the United States
United States
The United States of America is a federal constitutional republic comprising fifty states and a federal district...
established to provide the means to cure and control cystic fibrosis
Cystic fibrosis
Cystic fibrosis is a recessive genetic disease affecting most critically the lungs, and also the pancreas, liver, and intestine...
(CF). The Foundation provides information about cystic fibrosis and finances CF research that aims to improve the quality of life for people with the disease. The Foundation also engages in legislative lobbying for cystic fibrosis.
History
The Foundation was established in 1955 by a group of volunteers in Philadelphia, PennsylvaniaPhiladelphia, Pennsylvania
Philadelphia is the largest city in the Commonwealth of Pennsylvania and the county seat of Philadelphia County, with which it is coterminous. The city is located in the Northeastern United States along the Delaware and Schuylkill rivers. It is the fifth-most-populous city in the United States,...
. In addition to providing grants
Grant (money)
Grants are funds disbursed by one party , often a Government Department, Corporation, Foundation or Trust, to a recipient, often a nonprofit entity, educational institution, business or an individual. In order to receive a grant, some form of "Grant Writing" often referred to as either a proposal...
for research into cystic fibrosis and supporting clinical trials, the foundation promotes and accredits 115 specialized centers for treatment of individuals with cystic fibrosis. The Foundation has over 80 chapters and offices across the US.
In 1989, scientists working for the Foundation discovered the gene that causes cystic fibrosis, considered the key to developing a cure for CF.
The Foundation has been a pioneer of CF treatment, having played a major role in the development and use of four FDA-approved therapies.
See also
- List of cystic fibrosis organizations
- Canadian Cystic Fibrosis Foundation
- Cystic Fibrosis TrustCystic Fibrosis TrustThe Cystic Fibrosis Trust, founded in 1964, is the United Kingdom’s only national charity dedicated to all aspects of cystic fibrosis . It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with cystic fibrosis.-Objectives:Its objectives are:*To...
- Association Grégory Lemarchal
- NACFCNACFCNorth American Cystic Fibrosis Conference The NACFC is an annual conference. It is a medical/scientific forum designed for attendance by health care professionals and research scientists involved with Cystic Fibrosis...