Spondyloepiphyseal dysplasia congenita
SED
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blundell766
I have just found out about 1 year ago that i have SED and would like to talk to someone else who has been diagnosed with it. I have had facet joint injections twice now that help me but i would like to know more about it. Because of this i have been told i have only 60% lung capacity and find it hard to run for long periods of time. I would like to know if other people have this problem. The doctors have said that it is a rare condition so please if there is any body out there please get in touch. Cheers Mark
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