My daughter is 13 months old, and 20lbs. She was diagnosed with ts at birth. she started having tonic clonic seizures and infantile spasm (not long after) at six months. she was then put on tomax. she has been threw a series of drugs to control the tonic clonic seizures such as prednisone, clonozipine, and vigabitrin.
at the currenttime she is taking 60 mgs of topamax and 1000mgs of the vigabitrin. her infantile spasms are under control but the big issue is the tonic clonic seizures. she has about 30 a day. again she is 20lbs. is she getting enough medications? Is their a medicine that i should ask her dr about?oes anyone have the same issues with their baby?