Batten disease
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kathleen1249
I am a caregiver for a 12yr old girl, diagnosed at 6yrs. She is now blind, and in a W/C She talks but some is nonsensible. She has started having prolonged periods of fussing and crying. Try to redirect her but working less and less. Has anyone experienced this and do u think their in pain or just a part of the process and do u have any suggestions on how to deal with it.
thanks for any input.
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